Peer-Reviewed Articles

Withdrawal of Artificial Nutrition and Hydration Ethics Consult Commentary

Clinical Ethics Consult Commentary: Promoting Human-Centered Care

By | Articles, Commentary, Ethics Consult Reports, Peer-Reviewed Articles

When technologically advanced medicine fails to “rescue [a patient] intact from the conditions of her birth,” professionals must rely even more squarely on the foundation of good medicine – human-centered caring. While we do not disagree with Mr. Teti’s ethical analysis, we believe that ethics consultants can (and should) do more to support the medical team in achieving this foundational goal.

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Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics ethics of disclosing SUDEP

The Ethics of Disclosing and Discussing SUDEP with Families of Children Newly Diagnosed with Epilepsy

By | Articles, Peer-Reviewed Articles

The decision to discuss sudden unexplained death in epilepsy (SUDEP) presents a complicated ethical picture with potentially conflicting principles. The neurologist must decide how to disclose and discuss the problem of SUDEP, balancing the desire to help families by empowering them, without doing harm by overwhelming them with fear.

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Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics transitional care for adolescents

Transitional Care for Adolescents: From Concept to Practice

By | Articles, Peer-Reviewed Articles

Clinicians in the adult system are infrequently prepared to treat the variety of conditions seen in pediatrics, and the few providers who are available to this population struggle to absorb the growing number of older patients with childhood-onset disorders. Patients are frequently ill prepared to take on the responsibilities required to manage their own care; the pediatric system lacks functional processes for teaching patients how to develop these skills.

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