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Print issue in Production

Pediatric Ethicscope Volume 32 Number 1

Editorial Volume 31 Number 1

From the editors of Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics

Overview of Pediatric Ethicscope 2018 Volume 31 Number 1: Embracing diagnostic uncertainty; ECMO referral; moral language following pediatric death; ethical issues in genetics research; Children's Mercy Bioethics.

Referral for Extracorporeal Life Support in Newborns with Hypoxic Ischemic Encephalopathy

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics referral for ECLS

These...life-sustaining innovative therapies that require an ethical framework for shared decision-making with families and medical teams. We suggest a way of structuring team education to benefit urgent ECLS decisions for newborns with moderate to severe hypoxic ischemic encephalopathy (HIE).

Embracing Diagnostic Uncertainty

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics embracing diagnostic uncertainty

Doctors revise their diagnostic strategy to provide a timely and meaningful prognosis in accordance with parental goals. This narrative discusses issues of diagnostic uncertainty and the value of relying on clinical gestalt when trying to prioritize medical tests for a sick patient.

Dialogue with the Ethicist: Chris Feudtner MD, PhD

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics Chris Feudtner

Chris Feudtner MD, PhD, MPH visited Washington, D.C. this past Spring to give the Sanford L. Leikin Memorial Lecture for Ethics in Pediatric Care at Children’s National Medical Center. Following the lecture, he sat down with hospital staff, ethics committee members, and local ethicists to discuss a past case.

Transgressing Moral Imperatives

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics transgression of moral imperatives

Care providers of critically ill pediatric patients encounter ethically complex and morally distressing situations in their practice. This study sought to identify whether providers remark on ethical conflicts or note moral distress following recent in hospital pediatric death.

The Ethics of Disclosing and Discussing SUDEP with Families of Children Newly Diagnosed with Epilepsy

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics ethics of disclosing SUDEP

The decision to discuss sudden unexplained death in epilepsy (SUDEP) presents a complicated ethical picture with potentially conflicting principles. The neurologist must decide how to disclose and discuss the problem of SUDEP, balancing the desire to help families by empowering them, without doing harm by overwhelming them with fear.

Ethical issues in Genetics Research

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics issues in genetics research

While not different than with other kinds of research, issues in genetics research involving children can present differently and can be more challenging to manage

Doctor, I want BRCA testing for my girl

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics BRCA testing

In 1995, the medical establishment concluded genetic tests in minors should not be done outside of diagnosis of a treatable disease. The AAP concluded likewise in 2001 and 2013. A new phenomenon is emerging: young women of BRCA positive mothers are requesting genetic testing, and positions have softened with the recognition that some exceptions can be justified.

The Inclusion Of Children In Non-therapeutic Medical Research

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics non-therapeutic pediatric research

The debate about non-therapeutic pediatric research occurs over the balance between protecting child participants and ensuring the knowledge we need to threat the conditions children suffer from.

Education in Ethics: Children’s Mercy Bioethics Center Certificate Program in Pediatric Bioethics

editorial board member Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics education

The ethical issues in pediatrics can vary considerably from those in adult medicine. Thus, ethics education generalized for adult care is not necessarily relevant to the specific issues that arise in pediatric settings. The Children’s Mercy Bioethics Center’s Certificate Program in Pediatric Bioethics is the only program in the world that focuses exclusively on pediatrics.

Pediatric Ethicscope Logo

Print issue in Production

Pediatric Ethicscope Volume 31 Number 2

When Parents and Providers Disagree

When parents and providers disagree

Conflicts between parents and health care providers are among the most common of the ethical issues encountered in pediatrics. In this article, three cases are presented along with an ethical framework for thinking about cases in which parents and providers disagree.

Pediatric Ethicscope Volume 31 Number 1

Editorial Volume 31 Number 1

From the editors of Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics

Overview of Pediatric Ethicscope 2018 Volume 31 Number 1: Embracing diagnostic uncertainty; ECMO referral; moral language following pediatric death; ethical issues in genetics research; Children's Mercy Bioethics.

Referral for Extracorporeal Life Support in Newborns with Hypoxic Ischemic Encephalopathy

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics referral for ECLS

These...life-sustaining innovative therapies that require an ethical framework for shared decision-making with families and medical teams. We suggest a way of structuring team education to benefit urgent ECLS decisions for newborns with moderate to severe hypoxic ischemic encephalopathy (HIE).

Embracing Diagnostic Uncertainty

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics embracing diagnostic uncertainty

Doctors revise their diagnostic strategy to provide a timely and meaningful prognosis in accordance with parental goals. This narrative discusses issues of diagnostic uncertainty and the value of relying on clinical gestalt when trying to prioritize medical tests for a sick patient.

Dialogue with the Ethicist: Chris Feudtner MD, PhD

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics Chris Feudtner

Chris Feudtner MD, PhD, MPH visited Washington, D.C. this past Spring to give the Sanford L. Leikin Memorial Lecture for Ethics in Pediatric Care at Children’s National Medical Center. Following the lecture, he sat down with hospital staff, ethics committee members, and local ethicists to discuss a past case.

Transgressing Moral Imperatives

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics transgression of moral imperatives

Care providers of critically ill pediatric patients encounter ethically complex and morally distressing situations in their practice. This study sought to identify whether providers remark on ethical conflicts or note moral distress following recent in hospital pediatric death.

The Ethics of Disclosing and Discussing SUDEP with Families of Children Newly Diagnosed with Epilepsy

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics ethics of disclosing SUDEP

The decision to discuss sudden unexplained death in epilepsy (SUDEP) presents a complicated ethical picture with potentially conflicting principles. The neurologist must decide how to disclose and discuss the problem of SUDEP, balancing the desire to help families by empowering them, without doing harm by overwhelming them with fear.

Ethical issues in Genetics Research

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics issues in genetics research

While not different than with other kinds of research, issues in genetics research involving children can present differently and can be more challenging to manage

Doctor, I want BRCA testing for my girl

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics BRCA testing

In 1995, the medical establishment concluded genetic tests in minors should not be done outside of diagnosis of a treatable disease. The AAP concluded likewise in 2001 and 2013. A new phenomenon is emerging: young women of BRCA positive mothers are requesting genetic testing, and positions have softened with the recognition that some exceptions can be justified.

The Inclusion Of Children In Non-therapeutic Medical Research

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics non-therapeutic pediatric research

The debate about non-therapeutic pediatric research occurs over the balance between protecting child participants and ensuring the knowledge we need to threat the conditions children suffer from.

Education in Ethics: Children’s Mercy Bioethics Center Certificate Program in Pediatric Bioethics

editorial board member Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics education

The ethical issues in pediatrics can vary considerably from those in adult medicine. Thus, ethics education generalized for adult care is not necessarily relevant to the specific issues that arise in pediatric settings. The Children’s Mercy Bioethics Center’s Certificate Program in Pediatric Bioethics is the only program in the world that focuses exclusively on pediatrics.

Pediatric Ethicscope Volume 30 Number 2

Proem Volume 30 Number 2

An opening thought: sometimes cases in clinical ethics conclude, but leave a thought that remains just out of reach. In the wake of the case, a nagging sense of something meaningful yet elusive, like a broken outline, or a silhouette that can't quite be brought into focus–remains. We invite you to consider the following. Poem by Robert Frost.

Editorial Volume 30 Number 2

As we launch online as an open-access journal, Pediatric Ethicscope is now entering its 30th volume; it has, and will continue, to present the work of multidisciplinary contributors sharing diverse and nuanced perspectives on issues of import to pediatric medical ethics. Our aim is to disseminate the best and latest thinking on pediatric ethics. This is how we got here...

Shortages of Drugs, Surpluses of Ethical Challenges

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics shortages of drugs

Shortages of life-saving chemotherapeutics and supportive care agents are pervasive and enduring. These shortages represent a true public health crisis. In the United States, shortages of drugs, including chemotherapy and supportive care agents, have become a “new normal.”

Drug Shortages at Children’s National

Interview with Jeffery Dome MD, of Children's National Medical Center.

Jeffrey Dome MD, PhD, the Division Chief of Hematology and Oncology at Children's National, sat down with Pediatric Ethicscope to discuss the impact of drug shortages and how they are managed a large pediatric institution.

Dialogue with the Ethicist: Yoram Unguru, MD, MS, MA

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics Yoram Unguru

A set of twins was transferred to NICU; 25-weekers who came in for a neurosurgery consult on Friday. They both had significant brain bleeds, white matter loss, and hydrocephalus. One of the infants was better off than the other, but both had midline shift and were seizing. Physician and ethicist Yoram Unguru MA, MS, MD discusses the case.

Transitional Care for Adolescents: From Concept to Practice

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics transitional care for adolescents

Clinicians in the adult system are infrequently prepared to treat the variety of conditions seen in pediatrics, and the few providers who are available to this population struggle to absorb the growing number of older patients with childhood-onset disorders. Patients are frequently ill prepared to take on the responsibilities required to manage their own care; the pediatric system lacks functional processes for teaching patients how to develop these skills. Marcela Monti discusses transitional care for adolescents.

Shortages: The New Normal in Pharmacy

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics new normal in pharmacy

In recent years, dealing with drug shortages has become an integral part of a pharmacists work. Learn about the causes, management, and prevention from the pharmacists' perspective.

What Lies Beneath

What lies beneath the drug shortage crisis

Historical and axiological analysis of the drug shortage issue reveals drug pricing and differing values are inextricably linked to the problem.

From Classroom to Clinic

Pediatric Ethicscope: the Journal of Pediatric Bioethics and Pediatric Ethics from classroom to clinic

Students rush into the halls to watch another fight. While some hoot and holler, others whisper, “they belong at Hartgrove.” Former south side of Chicago teacher, Joseph Lee MD discusses his journey from teacher to physician.

Ethics Education: Harvard Clinical Bioethics Course

Ethics education Harvard bioethics course

From July 7 through July 9th 2016, the Harvard Center for Bioethics held its annual Harvard Clinical Bioethics Course at the Harvard Medical School in Boston. Nearly thirty hours of lectures, discussion groups, working lunches, and even a play were presented over those three days. Pediatric Ethicscope reports.

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